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Meeting reminder; advocacy

Hello Fair Oaks Folks!

Our regular PD support group meeting is scheduled for Saturday, March 24 from 10:00 to 12:00 noon in the crafts room of Sunrise Senior Living at Fair Oaks on Joseph Siewick Dr. in Fairfax. As we mentioned last  month, the PFNCA Parkinson’s Symposium is scheduled on the same date, and a number of our group members will be attending.

Sonia Gow  has graciously offered to lead the meeting at Sunrise at Fair Oaks on March 24 for those not attending the symposium. Sonia will share helpful information and news of upcoming events of interest in our PD community. The PD Social Network Cafés, which she hosts, continue to grow and several new locations have opened recently. Thank you Sonia for all you do for our PD community.

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Below information is shared from the Michael J Fox Foundation for Parkinson’s Research about a way to advocate for the PD community:

April is Parkinson’s Awareness Month. While there has been significant progress in treatment and cause for optimism, our goal is for a cure within our lifetime. Here is one way to be an advocate for our PD  community. Contact your members of Congress and ask them to fund  a national Parkinson’s  database and support Parkinson’s Research funding. You can go online to;  advocate.michaeljfox.org  where there are 3 letters (templates) & instructions on how to email your representative, asking them to sign the “Dear Colleague “ Letters. Optional, you can personalize the message and explain why these letters matter to you as a member of the nationwide community of Americans whose lives are touched by Parkinson’s  disease.

 

 

 

Sandy, Please rewrite my paragraph about the meetings as needed and I  thank you for doing so..

I almost forgot the fwd letter below.. I don’t reply to all requests for speakers, as we get so many from marketers. I  don’t believe we want an unknown speaker, talking about recovery from substance abuse  among care takers. Is  not our focus.  Maybe we need a form letter, thanking them,  but saying no thanks, politely of course.

Donna

 

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February Meeting 2/24, Reminder and Info

Hello Fair Oaks Folks!  Our Feb. PD support group meeting will be held at the Sunrise Senior Living at Fair Oaks on Joseph Siewick Dr. in Fairfax, but we will meet in the Craft room for the next few months, while renovations are being done on the 3rd floor.The Craft room is located just below the library on the 2nd floor; there will be a sign on the doors. It is a comfortable  room and even has a small kitchen at one end.

We will have the soup and sandwich pot luck that we had to postpone in Jan. Donna will bring a soup (butternut squash) that can be sipped or spooned from a cup.  We’re asking attendees to bring a sandwich that can be sliced to share on a platter.  Donna will supply plates, soup cups, and plastic tableware.  Chips, fruit or cookies are also welcome. We will talk among ourselves and catch up with news. (A planned boxing demonstration had to be postponed due to space limitations.)

Looking ahead for next month, the annual PFNCA  Symposium is on March 24th, (the 4th Saturday) so we need to discuss if we want to meet on another date, or have both options available. Donna, our wonderful facilitator, will be attending the Symposium and it’s likely that many other group members will also.

American Parkinson Disease Association

FYI: Free Web/Teleconference
Thursday, March 29, 2018

1:00 PM – 2:00 PM ET
Join us to hear expert perspectives to help people with Parkinson’s disease (PD) understand the importance of exercise and recognize why staying fit can help improve PD symptoms. This program is designed to help people with PD, family members, and care partners. Please share this invitation with anyone in your support network whom you feel will benefit from this information.

SPEAKER

Terry Ellis, PhD, PT, NCS
Assistant Professor, Department of Physical Therapy & Athletic Training
Director, Center for Neurorehabilitation

Boston University
College of Health & Rehabilitation Sciences: Sargent College
Boston, MA
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IMPORTANT: Change in Meeting Location Saturday 1/27

      LOCATION CHANGE FOR  PD SUPPORT GROUP MEETING 
                                     SATURDAY, JANUARY 27
Flu season has arrived! Sunrise Senior Living is under quarantine because of a flu outbreak. Though the quarantine may be lifted before this weekend, we made the decision to  move the meeting to minimize the risk of spreading the flu to residents of Sunrise and our support group members. Our Jan 27 meeting will be held on the Fair Oaks Hospital campus, next door to Sunrise at the Inova Cancer Center, located across from the main hospital at 3850 Joseph Siewick Drive, Fairfax, 22033. The building number 3850 is on the front of the building and there are  handicapped parking spaces in front and
more in the lot across the street. Inside, the elevators are a short walk down the hall on your left. We will meet on the lower level (LL) in conference rooms A and B. (exit the elevator, turn left and walk through
the glass doors to the conference rooms in the back where some of us attend Joy’s BIG exercise program.) Sonia has an interesting and interactive program planned for us, so come and join the conversation this Saturday.
We will postpone our sandwich pot luck until we are back at Sunrise.
Stay well and enjoy the warmer weather!
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Reminder: meeting on 1/27, your feedback requested

Happy New Year!!  Hopefully you are keeping warm or staying cool, depending on the downs and ups of temperature.  At any rate, winter makes us think of soup and sandwiches, so for our Saturday,  January 27th meeting, we’re having a sandwich pot-luck gathering.  Donna will bring a soup (butternut squash) that can be sipped or spooned from a cup.  We’re asking attendees to bring a sandwich that can be sliced to share on a platter.  Donna will supply plates, soup cups, and plastic tableware.  Chips, fruit or cookies are also welcome. We will meet in the Bistro on the third floor of Sunrise at Fair Oaks ( right turn off the elevator) on Joseph Siewick Dr.  from 10 -noon.  People living with PD and their care partners are welcome to attend.
 Sonia Gow has an interesting topic to discuss with the group and would like our feedback. She is developing an educational program for professional care givers and wants to  hear about our experiences and suggestions. This is an opportunity to express “what we want them to know”  about living with Parkinson’s. For those of us who have not yet used outside help, it will be an opportunity to learn what to expect and how to find knowledgeable care givers. This promises to be a lively and helpful discussion for people with Parkinson’s and family members.
Here is a description of the topic and Sonia’s request in her words:
It’s Your Turn to be Heard!
 
I am creating an educational program for the Parkinson Social Network to present to professional caregivers – the people who care for us in our homes, in long term care, in rehab and nursing homes, day centers, etc. Many of the current presentations for professional caregivers stick to the usual Parkinson’s 101 where they learn about symptoms and treatment, and while I do want to include this basic information, I also want to make it more personal. I want them to really understand how people living with Parkinson’s feel and what they need. I am inspired by something our friend Bob once told me, that people don’t know what it’s like for him.
So while we’re munching on our potluck sandwiches and soup, I would like to hear from you about your experiences with professional caregivers – both good and bad – as well as your suggestions for the kind of care you would like to receive. I would include them in a section called What People With Parkinson’s Want You to Know. Your experiences and suggestions will help me to pinpoint where the professionals could do things differently because I really want them to see you all as the unique individuals you are, and not just as another patient or client. I want to address the needs we hear about and to help make life easier for people with Parkinson’s and those that care for them.
If you’re unable to attend this meeting but have something you’d like me to include, please send me an email at sonia@ParkinsonSocialNetwork.org. Thank you for your help and I look forward to hearing what you have to say on January 27. See you then!
Cheers,
Sonia
Sonia Gow
President and founder
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Holiday Luncheon Reminder, 12/9

For those who signed up, the Holiday Luncheon is this Saturday 12/9 from 12:00 to 2:00 at Ozzies in Fairfax Corner, 11880 Grand Commons Ave., Fairfax, VA.  Looking forward to celebrating the holiday season with dear friends.  There will not be a December support group meeting on the 23rd.

 

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Holiday Happenings: Meeting 11/25 & Luncheon 12/9

Wishing everyone a happy and healthy Thanksgiving. Safe travels to those going out of town and a reminder to those staying local over Thanksgiving , we will have a regular support group meeting on
Saturday , Nov. 25 from 10 AM – noon at Sunrise at Fair Oaks. 3750 Joseph Siewick Dr. (Behind Fair Oaks Inova Hospital) 3rd floor.  A suggested topic is, “ Tips on how to avoid stress during the holidays”

On Saturday, December 9th we will meet at OZZIES Restaurant for a festive holiday luncheon.
Time : Noon – 2 PM
OZZIES is located in Fairfax Corner shopping area, at 11800 Grand Commons Ave. The area we have reserved is wheel chair and walker friendly, with a ramp leading into the attractive and comfortable room.
For directions or menu info their website is; ozziesgoodeats.com

Please RSVP to Donna by December 1st
fairoaks.pdgrp@gmail.com

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Educational Opportunity!!

InovaPDNovemberEventFlyer