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IMPORTANT: Change in Meeting Location Saturday 1/27

      LOCATION CHANGE FOR  PD SUPPORT GROUP MEETING 
                                     SATURDAY, JANUARY 27
Flu season has arrived! Sunrise Senior Living is under quarantine because of a flu outbreak. Though the quarantine may be lifted before this weekend, we made the decision to  move the meeting to minimize the risk of spreading the flu to residents of Sunrise and our support group members. Our Jan 27 meeting will be held on the Fair Oaks Hospital campus, next door to Sunrise at the Inova Cancer Center, located across from the main hospital at 3850 Joseph Siewick Drive, Fairfax, 22033. The building number 3850 is on the front of the building and there are  handicapped parking spaces in front and
more in the lot across the street. Inside, the elevators are a short walk down the hall on your left. We will meet on the lower level (LL) in conference rooms A and B. (exit the elevator, turn left and walk through
the glass doors to the conference rooms in the back where some of us attend Joy’s BIG exercise program.) Sonia has an interesting and interactive program planned for us, so come and join the conversation this Saturday.
We will postpone our sandwich pot luck until we are back at Sunrise.
Stay well and enjoy the warmer weather!
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Reminder: meeting on 1/27, your feedback requested

Happy New Year!!  Hopefully you are keeping warm or staying cool, depending on the downs and ups of temperature.  At any rate, winter makes us think of soup and sandwiches, so for our Saturday,  January 27th meeting, we’re having a sandwich pot-luck gathering.  Donna will bring a soup (butternut squash) that can be sipped or spooned from a cup.  We’re asking attendees to bring a sandwich that can be sliced to share on a platter.  Donna will supply plates, soup cups, and plastic tableware.  Chips, fruit or cookies are also welcome. We will meet in the Bistro on the third floor of Sunrise at Fair Oaks ( right turn off the elevator) on Joseph Siewick Dr.  from 10 -noon.  People living with PD and their care partners are welcome to attend.
 Sonia Gow has an interesting topic to discuss with the group and would like our feedback. She is developing an educational program for professional care givers and wants to  hear about our experiences and suggestions. This is an opportunity to express “what we want them to know”  about living with Parkinson’s. For those of us who have not yet used outside help, it will be an opportunity to learn what to expect and how to find knowledgeable care givers. This promises to be a lively and helpful discussion for people with Parkinson’s and family members.
Here is a description of the topic and Sonia’s request in her words:
It’s Your Turn to be Heard!
 
I am creating an educational program for the Parkinson Social Network to present to professional caregivers – the people who care for us in our homes, in long term care, in rehab and nursing homes, day centers, etc. Many of the current presentations for professional caregivers stick to the usual Parkinson’s 101 where they learn about symptoms and treatment, and while I do want to include this basic information, I also want to make it more personal. I want them to really understand how people living with Parkinson’s feel and what they need. I am inspired by something our friend Bob once told me, that people don’t know what it’s like for him.
So while we’re munching on our potluck sandwiches and soup, I would like to hear from you about your experiences with professional caregivers – both good and bad – as well as your suggestions for the kind of care you would like to receive. I would include them in a section called What People With Parkinson’s Want You to Know. Your experiences and suggestions will help me to pinpoint where the professionals could do things differently because I really want them to see you all as the unique individuals you are, and not just as another patient or client. I want to address the needs we hear about and to help make life easier for people with Parkinson’s and those that care for them.
If you’re unable to attend this meeting but have something you’d like me to include, please send me an email at sonia@ParkinsonSocialNetwork.org. Thank you for your help and I look forward to hearing what you have to say on January 27. See you then!
Cheers,
Sonia
Sonia Gow
President and founder
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Holiday Luncheon Reminder, 12/9

For those who signed up, the Holiday Luncheon is this Saturday 12/9 from 12:00 to 2:00 at Ozzies in Fairfax Corner, 11880 Grand Commons Ave., Fairfax, VA.  Looking forward to celebrating the holiday season with dear friends.  There will not be a December support group meeting on the 23rd.

 

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Holiday Happenings: Meeting 11/25 & Luncheon 12/9

Wishing everyone a happy and healthy Thanksgiving. Safe travels to those going out of town and a reminder to those staying local over Thanksgiving , we will have a regular support group meeting on
Saturday , Nov. 25 from 10 AM – noon at Sunrise at Fair Oaks. 3750 Joseph Siewick Dr. (Behind Fair Oaks Inova Hospital) 3rd floor.  A suggested topic is, “ Tips on how to avoid stress during the holidays”

On Saturday, December 9th we will meet at OZZIES Restaurant for a festive holiday luncheon.
Time : Noon – 2 PM
OZZIES is located in Fairfax Corner shopping area, at 11800 Grand Commons Ave. The area we have reserved is wheel chair and walker friendly, with a ramp leading into the attractive and comfortable room.
For directions or menu info their website is; ozziesgoodeats.com

Please RSVP to Donna by December 1st
fairoaks.pdgrp@gmail.com

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Educational Opportunity!!

InovaPDNovemberEventFlyer

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Monthly Meeting 10/28 and Event of Interest 10/23

Our next PD support group meeting will be Saturday Oct 28 from 10 am – noon at Sun Rise Senior Living at 3750 Joseph Siewick Drive. ( behind Fair Oaks Hospital) 3rd floor room left of the elevator.
People with PD, their spouse, family member or care takers are welcome to attend meetings.

We are pleased to welcome Karl and Angela Robb as the speakers at our Oct. support group meeting. Karl has lived with Parkinson’s for over 30 years. He and his wife Angela are devoted advocates on Parkinson’s issues and have much to share with us. Karl is the author of the blog and book, “A Soft Voice in a Noisy World,” which recently made Healthline.com’s short list of books “That Shine A Light on Parkinson’s.” Karl co-authored a second book with Angela, “Dealing and Healing with Parkinson’s and Other Chronic Conditions,” a workbook that explores living well with a chronic health condition. Karl and Angela inspire us to live our best lives with Parkinson’s. Come and join us for an informative and fun program with two of the nicest and most knowledgable people in our PD community ..
They will bring copies of their books and have a book signing after the meeting.

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Here is an invitation for the entire PD support group.  Note that the
dinner is sponsored by a pharmaceutical company and is free for the person with PD and their spouse or care partner. Those who plan to attend will need to RSVP directly (see email below) to help plan limited seating.

This program, part of a new Speaker Program for people with PD, is titled “Your Path to Greater Personal Empowerment” will be addressing the changes that occur as PD progresses and the common challenges that patients face. Patients and their partners will be empowered with knowledge and tools to rise up and face these challenges. Please note this is a non-branded program and no pharmacological products are promoted. This is an educational disease state program. The program is ideally suited for those who have been living with PD for over 5 years.

The event will be held at The BRIO TUSCAN GRILLE at 7854 Tysons Corner Center in Mc Lean, VA on Monday, October 23 at 4:00 pm.
Joining me as a speaker that evening is Fahd Amjad, MD, a Movement Disorders Specialist from Georgetown University.

As a dinner will be served for the patient and a guest, should they like to bring one, we are asking persons to RSVP by going to:

https://abbvieconsumer.meintl.com/home/index/NP004-DN04-17

An RSVP is greatly appreciated as seating is limited to room size.

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ParkinsonTV

Upcoming Event Series: ParkinsonTV

Introducing ParkinsonTV, a new educational TV series piloted by the University of Rochester, in collaboration with Dr. Bas Bloem and Radboud University in the Netherlands. The series presents neurologists, patients, and topic experts in a discussion of various aspects of living with Parkinson’s, as well as ways to maximize quality of life.

The first season will consist of six episodes on the topics of exercise, medication, nutrition, advanced therapies, speech therapy, and occupational therapy. The first episode aired Tuesday (9/5), and can be accessed at the following link: https://www.youtube.com/watch?v=Usw2zbHmyjE

Episodes will air each Tuesday at 8PM EST.

If you would like to receive the episode links each week via email, please contact Alistair Glidden at alistair.glidden@chet.rochester.edu and he will add you to the email distribution list.