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Free webinar / resources / survey

Free Webinar:
Pain & Fatigue in Parkinson’s

Thursday, August 14, 2014 at 1:00 p.m. ET
Join the National Parkinson Foundation for a special webinar featuring guest speaker Christopher W. Hess, MD. Dr. Hess will discuss ways to minimize pain and fatigue, two often overlooked yet common symptoms of Parkinson’s disease.
About the Presenter: Christopher W. Hess, MD, University of Florida Center for Movement Disorders & Neurorestoration

Online pre-registration is required.
You can also gather your friends, family, caregivers and support group to watch the webinar together.

For more details, please call the National Parkinson Foundation Helpline at 1-800-4PD-INFO (1-800-473-4636) or email helpline@parkinson.org.

Watch our past webinars by visiting www.parkinson.org/webinars.

Partners in Parkinson’s:
resources, movement disorder specialist finder tool

The Michael J. Fox Foundation and AbbVie have partnered to create Partners in Parkinson’s, a strategic health initiative which aims to fill in knowledge gaps, provide new educational tools and resources for the Parkinson’s community to help patients optimize their care from diagnosis through advanced disease.

Every person experiences his or her own journey with Parkinson’s disease, and having a doctor who understands and listens to you at every stage of disease is an important part of living well with Parkinson’s.

Visit our Multimedia Resources page to watch a new video about what to expect from an appointment with a movement disorder specialist — a neurologist who specializes in Parkinson’s — and the positive impact this type of healthcare professional had on one family living with the disease.

Already know the benefits of incorporating a Parkinson’s specialist into your care team but haven’t been to one yet? Find a movement disorder specialist near you with the Partners in Parkinson’s Movement Disorder Specialist Finder Tool.

Resources for PD

Click here to access a list of local centers and local and national organizations compiled by Andrea Perseghin (aperseghin@vcu.edu) at VCU Parkinson’s and Movement Disorders Center.

Survey:
What do you think about clinical trial participation?

Hello Everyone – Our friend Jean Burns is looking for feedback regarding clinical trial participation.  Below is her email about the survey.
This is a legitimate survey and the info received will be put to good use.
Angela Robb
Fairfax City PD Support Group

https://www.surveymonkey.com/s/pd_survey_trials

Too many researchers, members of pd orgs, and pharma don’t know what individual pwps truly think of clinical trial participation. I don’t think any one has ever asked me. How about you? How can we increase clinical trial participation if we don’t know what the barriers are?

So I’m trying to make outreach to as many pwp as I can, and to organizations around the US. I will share this information free.

I’d be forever grateful if you would send this link out to your members! And if you can think of others, please forward this or send me an email with that info.

Together we can make a difference.

best,
Jean Burns

Person living with Parkinson’s
Parkinson’s advocate & activist
Co-Founder PDPlan4Life
Member Board of Advisors, Banner Neuro Wellness

twitter: @ridemytrike
www.pdblogger.com
www.pdplan4life.com

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