Hi Everyone! We had a great meeting on Saturday with 33 attendees and a great presentation from the ladies at Washington Speech. Lewis had worked with them and demonstrated some of the exercises. We were all impressed by how strong and LOUD his voice is now. I’m waiting to hear back from our speakers so I can post a copy of their handout for you but in the meantime, here are some announcements and events to make a note of in your calendars . . .
George Mason University offers a graduate certificate in Assistive Technology. It is part of their College of Education and Human Development.
I have been in contact with them because one of their courses is Designing Adaptive Environments. This is done now as a distance education course. They are looking for a disability to design for and have agreed to take on the Parkinson’s Disease as their case.
This would involve a presentation to the students in mid-September (PWP can email their issues with their home, better know as a wish list, and I will get the list to the professor). The grad students brainstorm and divide into working groups by rooms in the home. The professor will set up a client email (using AOL) so that the class can ask questions through-out the semester. I can be the contact for this, or multiple people can be. The PWP client can virtually attend the class presentation the 2nd week of December which is followed with Q&A.
The PWP clients then will receive a printed copy of the report, CD presentation and other related resources in January after the holidays.
I think it would be a great project for the students and it would be nice to share with other support groups. It would be something we could all have for our resource.
Let me know if you are interested. If you email me with subject “GMU universal design project” I will collect info and pass it on to GMU.
August support group events
1st & 3rd Wednesdays – August 6 & 20 at 6:00 pm
We meet at: Jason’s Deli 12955 Fair Lakes Shopping Center, Fairfax, VA 22033
Just an informal get together to connect with your support group friends. No need to RSVP, just drop in! Light meals, beverages and desserts are available.
This event seems to have quieted down considerably lately. I hope people will attend because it’s a great opportunity to catch up with friends.
If you haven’t been attending because you don’t like something about this arrangement, please let me know (firstname.lastname@example.org) and perhaps we can work out something else.
Mall walking & coffee
every Friday at 10:30 am –
The idea is that you can walk before or after joining the group for coffee and a chat with your support group friends at Corner Bakery at 10:30 am. If you’re really feeling enthusiastic you can walk before AND after! No need to RSVP. FYI – it’s .75 of a mile to walk around on one level, inside of the mall, including all the nooks and crannies.
Corner Bakery is no longer at the Fair Oaks Mall and attendance has dropped for this event so we’ll consider this cancelled for now.
If you do want to continue with this social event, please let me know (email@example.com) . . .
Support group meeting
Saturday, August 23, 10:00 am – 12 noon
At: Sunrise at Fair Oaks, 3rd floor 3750 Joseph Siewick Dr, Fairfax VA 22033
No speaker this month, so we’ll enjoy chatting with each other in our separate groups – people with PD and carepartners.
Many people in our group really appreciate these meetings because it gives them the chance to talk about problems they might be having and hear about what works for other people.
Upcoming meetings . . .
September 27 – Speaker: Jennifer Robinson, massage therapist
For more information about Jennifer, please click here.
Fairfax City PD Support Group
no meetings in July & August
At: Green Acres Community Center, Room 112 (click here for directions).
Contact: Karl & Angela Robb
Fairfax City PD Support Group
home phone: 703-277-9666 email: firstname.lastname@example.org
Save the Date! Sunday September 14, 2014 – Walk for Parkinson’s
For the latest information about PFNCA events check out www.ParkinsonFoundation.org.
Annual symposium in Falls Church was on March 1. If you weren’t able to attend, they usually post the slides from the presentations on the PFNCA website. Click here to view slides from previous symposiums.
2014 Richmond Parkinson’s Disease Community Education Day
Saturday October 11, 2014, 8:00 AM – 3:30 PM
At: Mount Vernon Baptist Church
11220 Nuckols Road, Glen Allen, VA 23059
People with Parkinson’s disease (PD), their family and friends, or anyone interested in learning more about PD are invited to the annual Parkinson’s Community Education Day.
Registration is $25 per person and includes continental breakfast, lunch & afternoon refreshments.
General sessions include:
Integrative Medicine – Dr. Monique Giroux, DBS & Quality of Life – Dr. Kathryn Holloway, Nutrition – Dr. Marian Evatt
Break out session offerings:
Exercise – Dr. Jeff Hoder, Video Game Research – Dr. Ben Herz,, Caregiver/Care Partner Challenges, PD 101
Visit the conference website for a full agenda, hotel accommodation rates and location information.
Partners in Parkinson’s Washington DC – save the date!
Sunday, October 12, 8:00 AM – 4:00 PM (N.B. – change of date from 10/11/14)
Partners in Parkinson’s is a free educational event for people with Parkinson’s and their families and will take place at the Walter E. Washington Convention Center. Breakfast and lunch will be provided. The program features presentations and panel discussions with local Parkinson’s specialists, research experts and patient panelists. It also includes a resource fair to connect attendees with local support groups, clinical sites, allied healthcare providers, and more.
For more information or to register, visit www.partnersinparkinsons.org .