Leave a comment

Meeting reminder; advocacy

Hello Fair Oaks Folks!

Our regular PD support group meeting is scheduled for Saturday, March 24 from 10:00 to 12:00 noon in the crafts room of Sunrise Senior Living at Fair Oaks on Joseph Siewick Dr. in Fairfax. As we mentioned last  month, the PFNCA Parkinson’s Symposium is scheduled on the same date, and a number of our group members will be attending.

Sonia Gow  has graciously offered to lead the meeting at Sunrise at Fair Oaks on March 24 for those not attending the symposium. Sonia will share helpful information and news of upcoming events of interest in our PD community. The PD Social Network Cafés, which she hosts, continue to grow and several new locations have opened recently. Thank you Sonia for all you do for our PD community.

_________________________________

Below information is shared from the Michael J Fox Foundation for Parkinson’s Research about a way to advocate for the PD community:

April is Parkinson’s Awareness Month. While there has been significant progress in treatment and cause for optimism, our goal is for a cure within our lifetime. Here is one way to be an advocate for our PD  community. Contact your members of Congress and ask them to fund  a national Parkinson’s  database and support Parkinson’s Research funding. You can go online to;  advocate.michaeljfox.org  where there are 3 letters (templates) & instructions on how to email your representative, asking them to sign the “Dear Colleague “ Letters. Optional, you can personalize the message and explain why these letters matter to you as a member of the nationwide community of Americans whose lives are touched by Parkinson’s  disease.

 

 

 

Sandy, Please rewrite my paragraph about the meetings as needed and I  thank you for doing so..

I almost forgot the fwd letter below.. I don’t reply to all requests for speakers, as we get so many from marketers. I  don’t believe we want an unknown speaker, talking about recovery from substance abuse  among care takers. Is  not our focus.  Maybe we need a form letter, thanking them,  but saying no thanks, politely of course.

Donna

 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s

%d bloggers like this: