There are lots of books on Parkinson’s but the books listed below have all been recommended by someone in our group. If you would like to recommend a book, please send me the information about it as well as why you liked the book so that people can get an idea of why it might be of interest to them.
Passages in Caregiving: Turning Chaos into Confidence
Author: Gail Sheehy
Publisher: William Morrow (May 2010)
Delay the Disease: Exercise and Parkinson’s Disease
Author: David Zid
Publisher: David Zid (March 2007)
Parkinson’s Disease and the Art of Moving
Author: John Argue
Publisher: New Harbinger Publications (Feburary 2000)
Ask the Doctor About Parkinson’s Disease
Authors: Michael S. Okun, Hubert H. Fernandez
Publisher: Demos Health (October 2009)
Note: All royalties from the book will be donated to the NPF
HOPE: Four Keys to a Better Quality of Life for Parkinson’s People
Author: Hal Newsom
Publisher: Northwest Parkinson’s Foundation; 2nd edition (July 1, 2006)
Natural Therapies for Parkinson’s
Author: Laurie K. Mischley, ND
Publisher: Coffeetown Press (October 2009)
Parkinson’s Disease: 300 Tips for Making Life Easier
Authors: Shelley Peterman Schwartz
Publisher: Demos Health, 2nd ed. (June 2006)
Parkinson’s Disease: A Complete Guide for Patients and Families
Authors: William Weiner, MD, Lisa Shulman, MD, Anthony Lang, MD, FRCP
Publisher: Johns Hopkins University Press (November 2006)
The Parkinson’s Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications
Author; J. Eric Ahlskog M.D. Ph.D.
Publisher: Oxford University Press (August, 2005)
Most of Me: Surviving My Medical Meltdown
Author: Robyn Michele Levy
Publisher: Greystone Books (July, 2012)
Navigating Life With Parkinson Disease by the creators of Neurology Now
Authors: Sotirios Parashos, Rosemary Wichmann and Todd Melby
Publisher: Oxford University Press, (November 20, 2012)
A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease
Author: Karl Robb, co-leader of the Fairfax City Parkinson’s support group
Publisher: RobbWorks (November 27, 2012)
Here’s a summary about the book:
Whether you are newly diagnosed or have had Parkinson’s disease for many years, younger or older, the lessons that Karl Robb offers in this book will apply to your situation. A culmination of over twenty years of personal experience, in A Soft Voice in a Noisy World, Karl Robb provides an assortment of tips and suggestions that have made a difference in his life and benefitted him in his personal struggle with PD.
This guide shows how one man successfully navigated the medical gauntlet with the support of his wife and care partner, and found his answers, often in the unlikeliest of places.
Drawn from the pages of the popular Parkinson’s blog, ASoftVoice.com, this once-skeptic turned Reiki master describes the importance of complementary therapies to “Parkinsonians” through his personal mind, body, and spirit journey, detailing the role these have played in the course of his personal healing. In this book you will learn how through maintaining a positive attitude and utilizing Reiki and other complementary therapies, Karl has kept his Parkinson’s in check, slowed the disease’s progression, and amazingly seen signs of improvement, even after over two decades of dealing with PD.
This book is a compilation of hundreds of insights and practical tools intended to add inspiration and ease to your daily life, including suggestions and resources for bettering your patient-doctor experience, living a productive and happy life, staying fit and active, traveling, participating in support groups, being a PD advocate, improving your mind-body connection, and empowering yourself to heal.
Praise for A Soft Voice in a Noisy World:
“Karl Robb shows us how under the most trying circumstances a human being can find strength and purpose beyond expectations.”
-Bill Moyers, award-winning broadcast journalist and author
“A humble, insightful book about taking charge of one’s life in the face of chronic illness.”
-Samantha Elandary, founder and CEO, Parkinson Voice Project
“A ‘must read’ for anyone who has been diagnosed with Parkinson’s-care partners, family members, or friends…wonderful, practical, common-sense ideas that apply to everyone.”
-Carol Walton, CEO, The Parkinson Alliance
“Karl Robb’s book offers sage advice and inspiration to help people affected by Parkinson’s to LIVE with the disease. ”
-Jackie Hunt Christensen, author of The First Year: Parkinson’s Disease and Life with a Battery-operated Brain: A Patient’s Guide to Deep Brain Stimulation for Parkinson’s Disease
“Karl Robb’s book draws you in to his life and makes the uninformed feel connected in a frank and true understanding of life with Parkinson disease.”
-Lou Nistler, Executive Director, Parkinson Foundation of the National Capital Area
We are asking you to help promote the book by doing one or more of the following to help us get the word out about the book:
• Please buy the book on Amazon (paperback and Kindle), Smashwords (lots of eFormats), CreateSpace (paperback), Kobo, iTunes or Barnes & Noble (Nook).
• “Like” or “share” us on Facebook, Smashwords, CreateSpace, Kobo, Barnes & Noble (Nook), Amazon (paperback and Kindle), iTunes, or Pinterest.
• Please take a moment to read a portion of this book and comment, review, rate, or blog about A Soft Voice In A Noisy World at any, some, or all of the sites listed above.
• Email us comments, suggestions, thoughts, or requests for speaking engagements to firstname.lastname@example.org.
We do have wholesale pricing for support groups, non-profits and organizations who want to sell copies of the book as a fundraiser or provide copies to their communities.
Please email or contact us for more details. Thanks to all our friends who have encouraged, supported, and helped us make this dream a reality!
Karl and Angela Robb