Resources for caregivers

Support Groups

PD CarePartners/Givers Gathering
We PD CarePartners need to take care of ourselves so we can be there for the people we care about.
This group meets the last Sunday of each month at the Fairfax Regional Library.
For more information please contact Sheila & George Steel.

Fairfax County – Family Caregiver Support Programs
Lots of resources to check out: Webinars, telephone support groups, community support groups, caregiver respite, resources line, free consultations, newsletters, publications, podcasts and videos.
For more information:  www.fairfaxcounty.gov/DFS/OlderAdultServices/caregiver.htm

Well Spouse Association – NOVA (Northern Virginia) WSA Support Group
Monthly Meetings, 3rd Monday at Kings Park Library, Burke
Contact Dorothy Saunders at 703-425-2430

Dementia support groups and education

Insight Memory Care Center
3953 Pender Drive, Suite 100
Fairfax, VA 22030
Email: imcc@insightmcc.org
Phone: 703-204-4664

Websites

National Family CareGivers Association

AgingCare.com -Includes a section on Parkinson’s
www.agingcare.com/Parkinsons-Disease

Caring.com

Sterling Heart – Caring for Caregivers

Medicare.gov – forms, help & resources

Fairfax County Caregiver Support

Janet Edmunson
Author of “Finding Meaning With Charles: Caregiving With Love Through a Degenerative Disease”.  Sign up for a weekly affirmation especially for caregivers. Webinars also available.

Wellspouse Association

Well Spouse Bill of Rights:
I have the right . . .
•To take care of myself.  This is not an act of selfishness.
•To seek help from others even though my family may object.  I recognize the limits of my own endurance and strength.
•To maintain facets of my own life, that do not include the person I care for,  just as I would if he or she were healthy.
•To feel and express my own emotions, even difficult ones such as sadness, fear and anger.
•To reject any attempts by my loved ones (conscious or unconscious) to manipulate me through guilt.
•To expect the  consideration, affection, forgiveness, and acceptance, which I demonstrate in my caregiving, to be reciprocated by my ill spouse.
•To take pride in the endurance and strength I have shown in meeting my ill spouse’s needs.
•To protect my individuality and my right to make a life for myself that will sustain me now and when my loved one no longer needs my help.
•To seek emotional support by participating in Well Spouse activities.
•To expect and demand that as strides are made to provide assistance to those who are ill and disabled, similar strides will be made towards aiding and supporting spousal caregivers.

*This material has been adapted, with spousal references, from the AARP book “Caregiving:Helping an Aged Loved One” by Jo Horme, and by Peggy Meisel’s WSA original.

Books

Passages in Caregiving: Turning Chaos into Confidence
Author: Gail Sheehy
Publisher: William Morrow (May 2010)

Newsletters

Fairfax County – Caregiver’s Corner Online Newsletter
Produced by the Fairfax Family Caregiver Support Program of the Fairfax Area Agency on Aging (AAA) with funding from the National Family Caregiver Support Program of the Older Americans Act.

Caregiver Newsletter
A weekly e-newsletter produced by Caregiver Media Group, publishers of Today’s Caregiver magazine and caregiver.com.

Medical ID and other important information

Senior Emergency Kit
Free! The Senior Emergency Kit features several worksheets that family caregivers can complete with the help of a senior loved one. This toolkit can be kept in an easy-to-reach location, such as a nightstand, to allow easy access to information.

Organizers

RePurposeIt – “Bringing Order Out of Chaos”
This company is owned by the daughter of one of our long-time support group members and comes highly recommended.
Home Organizing
•Clutter Control •Storage Solutions & Space Management •Repurposing a Room  (e.g. bedroom to craft room) •Minor Home Improvement Projects •House Prep/Clean-up   (e.g. holidays, guests,…) •Organizing Plans & Techniques •Time Management
Senior Move Management
• Downsizing •Move Planning Aid • Move Management Oversight • Sorting and Packing Assistance • Unpacking and Setting up a new home •Home Inventory

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