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Medical

Hospitalization/Medications

Several members of our group have experienced interesting stays in hospital. To help prepare for and better manage your time in hospital we found some articles and checklists that we hope you find useful.

All colored words and phrases are links.
I realize there are a lot of forms here, but you may find that some are more useful to you than others.

Are you prepared for a hospital stay
Written by Sonia and sent in an email to the group in January 2013

From the American Parkinson Disease Association (APDA)

The Challenge of Parkinson’s Disease: Adapting to a Nursing Home

From Parkinson’s Disease Foundation

Medications and Treatments

From Northwest Parkinson’s Foundation

My Medical Chart

“Use these links to find forms that will help you organize information important to your health care. Print these forms and update them regularly. Record important information between visits. File the forms in a care notebook. Bring this notebook to your medical visits and file new information and homework together in one place.
In this section you will find forms to store your medical history, update medication lists, set goals for your care, documents to help you prepare for medical and hospital stays, and worksheets for therapy.”

Parkinson’s Healthcare Guidelines
Optimize My Medical Visit
My Medication List
My Hospital Stay
My Symptom Checklist
Create your Healthcare Team

Medical Worksheets

Comprehensive Care Worksheet  Use this worksheet to determine who should be on your medical team.
Prepare for Your Medical Appointment

From the National Parkinson Foundation

• Medical Alert Card
Aware in Care kit
Information for your Nurse and Doctor for Hospitalization
Poor Medication Management of Parkinson’s Disease During Hospital Admissions: Patients and Families Can Improve Their Hospital-Based Management
Five frequently asked questions about hospitalization for patients with Parkinson’s disease
Information Checklist for Hospital Stays

From Northwestern University Parkinson’s Disease and Movement Disorder Center

Information for Your Nurse and Doctor When You Enter the Hospital

From Parkinson’s Disease Research Education & Clinical Center (PADRECC)

The form provided by PADRECC, Critical Information for Caring for the Parkinson’s Patient is an educational piece for medical professionals where you can list your medications, doses, the times you take your medications, off times, etc., as well as which drugs you cannot take.

Help with choosing a hospital or nursing home

From www.Medicare.gov:
Hospital Compare
Nursing Home Compare

Deep Brain Stimulation (DBS)

Book

A Guide to Deep Brain Stimulation Therapy
Author: Jill Marjama-Lyons, MD, Michael S. Okun, MD
Available online or as a hard-copy through the   National Parkinson Foundation

Video

It Ain’t Television . . .It’s Brain Surgery
By Ray Farkas
Available online on the Georgetown University Hospital website.
From the cover:
“This 18 minute film follows Ray Farkas before, during, and after his deep   brain stimulation procedure at Georgetown University Hospital to alleviate the symptoms of Parkinson’s disease. It is meant to be a humorous look at   a serious issue that has provided over 30,000 people who suffer from movement disorder new hope for a life they so richly deserve.

For more information about Georgetown University Hospital’s Movement Disorders Program or to make an appointment, call Georgetown MD, our free physician referral service staffed by nurse counselors.

Call 202-342-2400 or toll-free 866-745-2633
Monday – Friday 8:00 am – 8:00 pm
www.georgetownuniversityhospital.org

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