Websites, E-newsletters

Websites

Parkinson Foundations

Parkinson Foundation of the National Capital Area (PFNCA)
Our support group is part of the PFNCA. Their mission is to: “. . . improve the quality of life for people living with Parkinson disease, their carepartners and families within the National Capital Area, through:
•      Support & education programs
•      Exercise programs
•      Public awareness”

National Parkinson Foundation (NPF)
This website has some great forums: Ask the Doctor Ask the Nutritionist Talk to a Speech Clinician

Northwest Parkinson Foundation (NWPF)
The NWPF is based in Seattle, WA, and has a great website. Some of the things you’ll find are: Email News Update – weekly Parkinson Post – bi-monthly(US Mail or email) Wellness Center  covers Physical Health, Cognition and Emotion, Personal Healing, Home and Away, Care Partners, Motivation and Inspiration, and My Wellness.

Michael J. Fox Foundation for Parkinson’s Research
While the focus of this foundation is research, this website also features lots of good information on Living with Parkinson’s.

Parkinson’s Disease Foundation
From their website: “The Parkinson’s Disease Foundation (PDF) is working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research to find the causes of and a cure for Parkinson’s, while supporting people with Parkinson’s, their families and caregivers through educational programs and support services.”

American Parkinson Disease Association
From their website: “The American Parkinson Disease Association, Inc. was founded in 1961 to “ease the burden and find a cure” for Parkinson’s disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease.”

Davis Phinney Foundation
Our mission: to help people living with Parkinson’s to live well today. To support that mission we offer specific programs, information and tools for living well.
Since 2008, more than ten thousand people with Parkinson’s and their care partners have attended The Victory Summit® symposia. We have invested $1.2 million in funding of early-phase research that focuses on exercise, speech, movement and other factors that affect quality of life.
“How can I help?” Be part of the Victory Crew grassroots fundraising program, and make a difference in the lives of people living with this disease. In the last year over 4,000 people supported us through their generous donations. In return we have inspired, informed and provided tools to thousands of people living with Parkinson’s disease.
Click here for information about their Victory Summit Symposia.

Parkinson’s Research

PD Trials

Caregiving

National Family CareGivers Association
Caring.com
Medicare.gov/caregivers

Senior Health & Aging

Guide to Retirement Living Sourcebook
Information on housing, aging in place, money and legal, decision making, etc. for Northern Virginia and the states around Washington D.C.

Senior Navigator
Virginian resource for health & aging information for seniors and their caregivers.

E-newsletters

Parkinson’s News Update
This weekly e-newsletter comes courtesy of the Northwest Parkinson’s Foundation in Seattle and features Parkinson’s in the News.

Golden Gazette
The Golden Gazette is a Fairfax County publication with information of interest to older adults.

Caregiver’s Corner Online – Fairfax (County) Family Caregiver Support Program

“Take Care! Self-Care for the Family Caregiver”
Published by National Family Caregivers Association. They are switching to an electronic newsletter and more information can be found at their website.

Caregiver Newsletter
A weekly e-newsletter produced by Caregiver Media Group, publishers of Today’s Caregiver magazine and caregiver.com.

Northern Virginia Long-Term Care Ombudsman Program UPDATE Newsletter
News updates from the Northern Virginia Long Term Care Ombudsman program

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